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Award Winner

Festival Season:

January 2025

A RARE JOURNEY

A RARE JOURNEY

Directors:

Writers:

Agusta Fanney Snorradottir
Sigurdur Holmar Johannesson, Agusta Fanney Snorradottir, Hulda Bjork Svansdottir

Producers:

Sigurdur Holmar Johannesson

Run Time:

0:52:58

Awarded for the following Category(s):

Awarded Category(s)

A Rare Journey is a powerful documentary about Ægir Þór, an 11-year-old boy from Höfn in Hornafjörður, who has been diagnosed with Duchenne muscular dystrophy, a rare muscle disorder that affects his mobility. In this documentary, we follow Ægir Þór on an extraordinary journey across Iceland, where he meets other children living with rare diseases. Together, they share their stories, hopes, and challenges, building strong connections through their shared experience of navigating life with serious conditions. The film offers a deep and moving insight into the lives of children facing rare illnesses, while also celebrating their strength, courage, and resilience.

Submitter Statement

Ágústa Fanney Snorradóttir, born on April 14, 1987, is a filmmaker and television producer dedicated to raising awareness about social welfare issues. Her work focuses on highlighting the challenges faced by individuals living with chronic illnesses and disabilities. She is the producer of the television series Spjallið með Góðvild (The Talk with Goodwill), which has been airing for the past four years. The series has garnered significant attention for addressing important topics and fostering discussions around inclusivity and well-being in society. Ágústa Fanney has also directed the documentaries Human Timebombs and A Rare Journey. These films delve into the lives of individuals with rare diseases, shedding light on their struggles and resilience. Through her work, Ágústa Fanney has become a powerful voice for innovation and compassion in both filmmaking and advocacy.

Key Cast

Hulda Bjork Svansdottir, ÆGir ÞóR Sævarsson

Other Credits

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